I'm doing it AGAIN!

Three years ago, give or take a couple of days, I reached the halfway point in my pregnancy. At that time, I went in for the "big" ultrasound. That test kicked off the complications I would experience through the remainder of my pregnancy.

Since then, as soon as Christmas is over, I start obsessing about my daughter's birthday party. What should the theme be? Where should it be held? Who should we invite? What kind of cake? What kind of gift? The baloons, tableware, and gift bags are scrutinzed and accepted or rejected.

It didn't click the other day when I searched for Dora the Explorer party invitations for over an hour. It didn't click when I started investigating venues. However, today my sister-in-law posted on facebook about her baby's "big" ultrasound. The light bulb went off, and I realized I'm trying to once again take back control over my pregnancy. Since my pregnancy is over, the next best thing is the birthday party.

I'm going to try to control it a little bit better this year than last year. I'm going to try not to get too caught up in the details.

Here we go again, but I see improvement

I was triggered yesterday. I have to admit that I was struggling a bit before I set foot in the door. Once I left work, and started to drive out there, I found myself having some intrusive thoughts about running into my former OB. My concern with every new doctor is which section of the clinic they work out of, I'm terrified that I may bump into my former doctor on my way to an appointment with a new doctor. Anyhow, I saw the only doctor at my clinic that does the essure procedure. (Thank God, it was a woman.) We were discussing my candidacy for the procedure, and she went back through my hospital notes in great detail. That was a sure-fire way to make me feel like a freak of nature. Then suggested having another child by c-section - since no one would blame me for making that decision after my difficult first delivery. When I turned that suggestion down, she suggested I bring my ipod along to "relax' me during the actual procedure. She had no way of knowing that my husband and nurses used my ipod as a distraction for me in the first couple of hours out of surgery, so I wouldn't ask a lot of questions about what had happened. (I had a brief flashback in the appointment over this one.) And, followed all of that up with a quick exam to analyze my anatomy for the procedure.

By the time I left, I was really struggling. I was shaking, edgy, anxious, and having intrusive thoughts. I was planning to take the rest of the afternoon off, but I made the decision to go back to work instead. Within a half hour of getting back to work, the worst of the intrusive thoughts had gone away, and the shaking had subsided. I was still a bit edgy, and anxious, but those symptoms take me longer to deal with than the others.

Overall I was better in a couple of hours because I've learned to read my body and symptoms. I've learned how to deal with them - acknowledging them, and switching them up. And, finally I've learned to cut myself a little slack when it happens. I still find an occasional new trigger, but the disease itself is becoming manageable in a way I never believed that it could be managed.

By the way, I also managed to advocate for myself during this whole encounter. I was upfront with her about my PTSD diagnosis, and I made her aware of my need for a great deal of communication to cope with medical procedures. I also made her aware that my daughter's birth caused the PTSD, so she was really trying to be sensitive of my needs. She didn't quite make it, but she definitely tried.

Giving Birth Online

Dear Radio Station Host-

I know that it's "news" that someone in our community chose to broadcast their child's birth live on the internet. I can understand choosing to play the end of this event on the radio once to encourage conversation. However, I do not understand choosing to replay it over, and over, and over again. Just because you found the experience of giving birth to be the best moment of your life doesn't mean that every other mother or father feels the same way about their children's birth.

The sound of a newborn's cry can be amazing, but it can also be terrifying when it doesn't happen. Just stab the knife into every mom or dad whose baby was rushed to the NICU by replaying those sounds over and over again. What about the mom who gives birth to a stillborn child. That's a knife in the heart to those moms as well because they didn't and will never hear the sound of that baby crying in those moments. What about moms who have complications after the baby is born. The sounds of a baby's cry can shove them back into the delivery room where people are flooding the room trying to save mom's life.

I know society chooses to portray giving birth as joyful, fulfilling, amazing and miraculous, but that isn't every woman's experience. I work as a moderator on a forum for moms who are struggling with birth trauma. They've had experiences that leave them with mental health issues like PPD, PTSD, and other postpartum mood disorders. Everyday with their new child is a challenge. Listening to your broadcast replaying those moments can cause a mom with PTSD to have nightmares, flashbacks, and other anxiety issues. I know because I suffered from them yesterday and last night.

Women who don't have the great birth experience often feel isolated. They're not allowed to talk about their child's birth because society doesn't accept these experiences as valid. When a woman tried to talk about it, she gets shut down. She's told not to share her experiences with other women who are pregnant. Trust me, talking about hemorrhaging at a baby shower will get a woman verbally shot down in less than 30 seconds. The last thing they need are more reminders that "they did something wrong" or "they failed".

Please consider that not everyone experiences things the same way before you decide to replay a soundtrack of a very emotional experience over the air.

Concerned Listener

Humpty Dumpty

Humpty Dumpty sat on a wall.
Humpty Dumpty had a great fall.
All the king's horses and all the king's men
couldn't put Humpty together again.

I caught the last 20 minutes of Trauma last night. One character told the other that he needed to go get help. The other character responded, "what if once I let it all out I can't get it all put back in?"

That's the way I feel now about my PTSD. In the early days, I talked about my trauma. It gushed out of me on a daily basis. It was like I had to find a place for it to go that wasn't inside me, so I talked, and talked, and talked some more. I had friends tell me to let it go, and still I talked. I had people tell me it didn't matter what had happened to me, and still I talked. I thought that by talking, I could get it all out.

Now, I know that there's more to it than that. Talking about it was like opening the vent on a pressure cooker. It allowed me to open the appliance safely. However, now I worry that I might let something out that I don't want to have to put back inside me.

PTSD became the filter that my thoughts were processed through. PTSD became the glasses that I saw the world through. PTSD became my dirty little secret. It became my binky.

So, now I have to find away to allow myself to break enough that I can re-assemble myself into the person I want to be. I guess I'm ready to take that fall.

Facing Forward instead of Looking Back

My daughter was in her rear-facing carseat for a long time. Most kids turn around at a year, but she was so small that she didn't hit the minimum weight requirement for an additional 7 months after that milestone. We looked forward to the day that she'd be facing forward, that she could see out the car window, and that we could hand her things from the front seat. The day she turned around was a celebratory day! She was finally a big girl.

PTSD is the same way. You have to find ways to look forward instead of backward. We have to fight to live in the present, and not the past. It's hard to accomplish this, and once in a while we all fall off the wagon, but you have to get up and try again.

The month of September was hard, very, very, very, very hard. I was finding myself starting to slide back down that slippery slope of looking backwards. So, I've started trying to re-focus myself on the present and the future. I've made plans to take my daughter to the pumpkin patch this weekend. I'm trying to make plans for Halloween. I'm looking at November, and trying to see what I can line up, and I've made plans for a weekend getaway just before Christmas.

The past is gone. I cannot re-live it. I cannot change it. I must find a way to move forward into my future.

33 weeks of memories

I had an email from my sister-in-law yesterday. She’s pregnant for the third time. In my head I know this is a good thing. They want this baby. They’ll do their best for this baby. However, it’s making me anxious, edgy, and upset. I chickened out of calling her yesterday. I sent a brief Congratulations e-mail. I didn’t put it together until this morning, but her baby is due on the same day Peanut was due.

That’s what has me freaked out. They have the same due date. Each week I’ll be thinking about my disintegrating pregnancy and birth. There’s no reason to suspect that her pregnancy will go the same way that mine did. It’s incredibly rare for that to happen, but for the next 33 weeks I’ll have that reminder of ickiness.

I have to find away to break my association between those dates. It’s not my pregnancy. It’s not my birth. It’s not me. But it hurts. I’d love to have another child, but I know that neither my husband nor I can face another pregnancy. We’ve decided to have the big V performed this year. I know this is the best decision we can make. But I’m still sad that I will only have one child, one pregnancy, one birth.

Thirty three weeks of memories…

The value of routines

The last month has been difficult, trying, and chaotic. I have Bell's Palsy, my husband has a cracked tooth with an abscess, my daughter switched daycare centers, one of my dogs has an ear infection, the other dog has a nose infection, my grandmother passed away, and my water heater fan needed to be replaced. We have been flying by the seats of our pants for the last month. As a result, I'm edgy, anxious, and irritable. I've been triggered by my health issues. I feel like everything's out of control. However, October is a new month, and we're hoping to get back into the swing of things.

I've found that having a flexible routine is key to my ability to cope with the PTSD. There's something comforting about knowing, in general, what's going to happen next. I don't feel the need to plan every minute of the day. I don't obsess over eating dinner at 6:30 pm instead of eating at 5:30 pm, but I've found that following my routine makes it easier to stay on track. It keeps me in the present and looking forward. It reduces my anxiety levels which I desperately need after the last month. Reducing anxiety means less irritability which makes life better for my entire family.

I can't wait to get back to my routine. Get up, get dressed, get peanut to daycare, go to work, pick up peanut from daycare, cook and eat supper, play with peanut, have an hour or so with my husband, and go to bed.

Is birth women's war?

I’ve been thinking on this post for a while. I’ve started writing it, and put it away because I couldn’t find the words. However, after reading this blog post, I decided to pick it up and try again.

Is childbirth women’s war?

When I was pregnant, I asked my grandmother about my mom’s birth. At 85 years old, she could still vividly remember that day and her experience. My mom can still relate the stories of my and my sister’s births. My best friend can pull her memories of each of her children’s births at a moments notice. When you get together with a group of women at a baby shower or a wedding shower, it seems like birth stories come out of the closet.

I believe that we’re genetically programmed to remember the experience of giving birth. The combination of the hormones, the pain, the fear, the anxiety, the joy, and the love imprint those memories deeply into our brains. It’s not that big a stretch to believe that those memories can sometimes be improperly stored causing PTSD.

All over the internet, on discussions of PTSD after childbirth, you’ll see an argument stating that this cannot be a mental health disorder because it’s a natural occurrence in a woman’s life. However, no one debates the validity of PTSD in soldiers returning from war. Men have been going to war for thousands of years. Why is their experience considered to be out of the norm, but a woman’s childbirth experience is dismissed or trivialized?

Men have found some interesting ways to cope with the fallout of the experiences long before the PTSD diagnosis was made during the Vietnam War. They formed and joined groups like the VFW or the American Legion. They go, and hang out with others who have had similar experiences. It’s a safe place to discuss the horrors of what they saw, the feelings they had, and they can process the events.

Yet, women don’t have these types of places to go. In today’s society, new moms are often isolated from society. We’re left to navigate this new terrain by ourselves. Our parents are working, so we frequently don’t have our moms or dads to rely on in those first few days. Our husbands go back to work typically a few days or a week after the baby is born. We struggle to establish breastfeeding, caring for the other family members, and try to get enough sleep to function. There are days when just getting a shower seems like an insurmountable task. Is it any wonder that those memories can get hung up under those conditions?

I’ve heard some people wonder if PTSD after childbirth is a rich nation’s problem, but I don’t think it is. I think no matter where women give birth, that they’re at risk of developing this condition. Women in third world countries know that childbirth isn’t safe. Their entire pregnancy is spent in an atmosphere of anxiety. Will I survive? Will my child survive? If something goes wrong can they get me to a doctor or a midwife? They live with those fears for months. Those months of anxiety set them up for developing this condition when their childbirth experiences go awry. Just because they don’t have the resources for diagnosis and treatment doesn’t mean that they don’t develop the condition.

Others have blamed the medicalization of childbirth on the development of PTSD. However, I know that medical procedures don’t cause PTSD. It took months of counseling to admit this, but my PTSD had nothing to do with the medical procedures that were performed. They were entirely the result of the way that I was treated while I was in the care of the doctors and nurses at my daughter’s birth. The PTSD was a result of a lack of communication, a lack of understanding, a lack of consent, and a hostile birth environment.

Yep, I did call it a hostile birth environment. This is something that doctors, nurses, midwives, doulas, and support people can change. Medical professionals can choose to treat a birthing mom respectfully. They can choose to speak to her with honesty. They can accurately, and without coercion, discuss her options. They can choose to allow her to make a choice, so that she can own that decision. They can choose to make sure she understands the positive and negative consequences of her choice.

A Trip to the ER

So, last week I ended up in the emergency room of the hospital where Jennavive was born. I've been having problems with dizziness, and I'd seen the doctor the week before. She thought it was just vertigo - be patient, and it should go away on its own. However, I started having a lot of tingling, numbness, nerve pain in my face on my way to counseling Thursday night. I called my husband, asked him to pick up peanut, and went home. When I got home, I looked in the mirror, and my face was completely lopsided. My husband got home 1/2 hour later, and I asked him to take me to urgent care. As we started to head out of town to the clinic urgent care, I changed my mind, and asked him to head to the ER.

We stood behind a couple of other families waiting our turn to get checked in when the triage nurse came out of her room to start prioritizing patients. She spoke to the family in front of us, told them to stay in line, and came back to talk to me. I explained about my face drooping. She grabbed my arm, told my husband to check me in, and dragged me into the emergency room. I sat down on the bed, and she started strapping monitors to my chest, a blood pressure cuff around my arm, and taking a quick history. Two minutes later, the doctor was at my bedside asking questions and listening to my story. He told me that they were going to do an MRI. Another nurse came in, and started setting me up for an IV. (Doesn't anyone ask permission anymore?) I balked. I told her that I'd had a rotten birth experience, and I really didn't want the IV. I got lucky, the lab tech walked into the room to do a blood draw, so she told me that as long as the tech got a sample that they'd skip the IV.

I’ve been having problems since then. I was diagnosed with Bell’s Palsy. It’s not a big deal. It goes away on it’s own over time. It’s not pleasant, but not dangerous either.
But, it’s causing me nightmares, the feeling of being objectified, the feeling of being controlled, the feeling of being dismissed or ignored all coming raging back to me. I’m struggling to cope. My In-Laws have very graciously moved into our home for this week since I’m not allowed to drive. They’re making meals, performing projects around the house, mowing, and cleaning. It’s great that they’re willing to do this. I appreciate all of their efforts, and yet I feel like screaming – “GET OUT, I can do it MYSELF”. Except I cannot do it myself, and I know it. I know it’s the PTSD talking. It’s the dichotomy that I live with. My rational brain knows that everyone is looking out for me, everyone just wants to help me get better, but the irrational side feels like a little kid fighting off a temper tantrum. I want to fling myself on the floor, kick my legs, and scream at the top of my lungs.

Hopefully, acknowledging it will let it fade.

The good news is, I did advocate for myself in the ER after I got over the initial shock. I did get them to explain things to me. I did avoid an unnecessary IV. I did manage to keep myself in the present, and fight off the flashbacks. Even though my blood pressure skyrocketed to my PIH days of pregnancy, I kept my calm. I did ask a ton of questions the next day at the clinic appointment. I can hear my counselor telling me that I did a good job. My husband feels like I did a good job. The rational part of my brain knows that I handled this better than Jennavive's birth. I just wish the fall out was a little bit easier to handle.

How Family Members Cope

In the last few weeks, my husband has been talking more and more about Jennavive's birth. Even though 2 1/2 years have passed, it's like it's suddenly become burdensome to him. The first year, he refused to talk about it unless it was with someone extremely close to him. The second year, he became a bit more open, but still didn't really discuss it. Now, it seems like every week he's coming home and telling me about discussing it with a co-worker, a casual friend, or a distant relative.

I know that I've been struggling a bit lately simply because I'm getting asked A LOT about future children. (What is it with the two to three year spacing?) Anyhow, I'm sure my husband is getting some of those same questions, but it bothers me that it's bothering him so much now.

Rage - the Drug of Choice for PTSD

Personally, I kind of like the way that righteous, justified anger makes me feel. When I'm angry I feel powerful, not weak. When I'm angry I feel invincible, not helpless. When the anger is justified, those feelings seem even stronger because I'm "standing up for the little guy" or "showing the man".

I allow myself to fully experience it. I relish it. I wallow in it. I'm almost seduced by it. I don't let myself let go of it, because I like the powerful way it makes me feel. Justified, righteous, and powerful - it's like a drug to my brain. It feeds the PTSD. I burn with the emotions.

The problem is, when I'm angry there's no room for happiness. There's no room for remembering or appreciating my daughter's joyful laugh. I lose so much if I let it take over. I don't appreciate a bouquet of fresh flowers, a beautiful garden, or a sunny blue sky. I hate what I lose when it has me by the throat, so I'm trying to teach myself to let it go.

My boss told me once that I needed to forgive the doctor to heal. Sometimes I wonder if he's right. The anger shouldn't be a security blanket that I hold close. I should hold my family close.

I had a dream

I had a PTSD dream last night. It was odd for several reasons:

1. I was a man.
2. I had conquered PTSD.

In the dream, I was a motivational speaker. I went around speaking to other people about what it’s like to live with PTSD, how to work with PTSD, how to be more than you were because of PTSD. It was amazing to see myself as healed, as more, as open as I was in the dream. I viewed PTSD as a mountain to be climbed, a wall to be scaled, a battle to be fought, or a war to be won. It was a part of me, and yet not THE defining part of me. It was simply a fact like having brown hair. In the dream, I considered myself stronger, wiser, and more powerful than I was before the trauma.

I hope I’m on my way to that being my reality.

Snapping Turtles in Truck Beds

One of my most vivid memories from the year I started first grade, is of a huge snapping turtle in the bed of a pickup truck. One of the men on the indian reservation had captured this turtle, and he'd brought it over to the church to show it off to all of the other families. He found this big stick, actually a good sized tree branch, and was poking it at this turtle. I remember watching the turtle snapping at the branch, he was angry, scared, and trapped. The turtle just kept spinning around in the bed looking for new threats.

The year I turned six was a crazy year. I lived in 4 houses and 3 states, one of those houses was on an Indian reservation. I attended three different schools, and I was physically attacked by my little sister nearly every day. My family went from being solidly middle class to living in subsidized housing because my father decided to get out of the military and go back to college. There was so much instability and upheaval in my life.

Using EMDR yesterday, I was 5 again. The fear, the anger, the hatred, the pain, and the feeling of being dismissed that I’d bottled up so many years ago, erupted from their hiding place as a result of my daughter’s birth.

I felt like that snapping turtle – everyone poking at me, no place to go, no place to hide. I was trapped, angry, fearful, hurting, and confused by all of the changes in my life. At 5 you have no control over your parent’s choices. You live where they tell you to live. You wear what they tell you to wear. You act the way you’re told to act.

I don’t want to be that scared 5 year old anymore.

I am a 38 year old woman. I am a wife and a mom. I own my own home. I have a career. I have friends. I am only trapped by my mind. I no longer live in an abusive home. I no longer have to worry about a roof over my head, food on the table, and clothes on my back.

I am not a turtle fighting to get free.

Begin with the End in Mind

At work, when starting a project, my boss and I try to think about how we think an application will be used in the future. Right now we’re working on a project that will revolutionize, at least for our company, the way we collect and track subcontractor data and performance (safety, quality, and earned value). Our initial goal is very simple; however, we can both see that this has the potential to morph into something much more involved than what we’re trying to accomplish right now. We’ve been trying to make sure that this application has the flexibility to change as our company’s needs change. Every time we meet to discuss it, we’ll say “begin with the end in mind”.

So, when I read this blog post, it made me start thinking about the way I am inconsistent in applying it to my PTSD journey. When I started counseling, my counselor defined some goals to achieve – no more nightmares, being able to look at my daughter’s baby pictures, and not crying every time I talked about the experience. We accomplished all of those things, at least most of the time, but I’m still having problems. The problem is that I didn’t define me. I simply defined a change in the symptoms.

Now, I’m heading back to counseling to deal with this again. I’m trying to get all the way down to the roots, so I can free myself from this burden. I have to redefine my image of me. In some ways I’ve accomplished it. I’ve actually become more accepting of my body since my daughter was born. I now own a swimsuit, something that had been missing from my wardrobe for at least 10 years. I bought a slinky dress that had my husband salivating (according to him, I’d never looked sexier). I’ve made peace with my cantaloupe sized boobs, and will actually wear deeper v-neck and empire waist shirts than I ever did before. I’ve learned to ride a bike – I mean trike, but it’s still a big change. I love work. I’ve always felt safe there, and despite the sleepless nights, the anxiety, the edginess, my performance remains stellar. So, what’s left? I don’t know, but obviously something is still missing because I’m haunted again. I’ve had three nightmares in three nights, this isn’t normal anymore, and I don’t like it!

Weeds On My Mind

My husband has been working on a major landscaping project for the last few weeks. Actually, he’s finishing up a major landscaping project from when we first moved into our home 5 years ago. For some reason, despite the use of landscape fabric and rock, the weeds have overtaken the landscaping around the front of our house. The weeds have even taken root in the tiny area between the pavers of the front sidewalk. Every year, it’s a pain in the butt to go out and weed the area. We’ve lost plants / shrubs to the ever increasing weed population. The sidewalk has started to spread wider as the weeds have pushed the pavers apart. This year, we’ve had enough. We’re pulling up all of the rocks, the landscape fabric, and the pavers, and starting all over with new fabric, mulch, and rebuilding the sidewalk.

So, how does this relate to my PTSD?

The weeds are the thoughts from the past that keep intruding into my present. They’ve been choking the life out of me for the last two years. It seems like every six months, I go through and yank them all out, but pretty soon they’ve taken over again. I have one passing thought, I don’t acknowledge it, I don’t challenge its validity, and I just let it hang out. The next thing I know, there’s another one, and another one, and another one. They grow huge, the roots dig down deep into the fertile soil of my brain, and they begin to take over.

I have to find away to turn my hyper-vigilance inside myself. I need to use it to root out the weeds / thoughts when they’re tiny instead of letting them grow big and strong. I need to finish my landscaping project, and free myself from the weeds in my mind. I want to be able to spend that time having fun, focusing on my family, being ME instead of dealing with the garbage of the past.

It’s not easy. I know it will take a lot of work, but I’m done with this… just like I’m done with fighting the weeds in my yard.

Acknowledging Irrational Thoughts

Wow!

I feel so much better. Putting a face on why I'm feeling the way I do, acknowledging my feelings instead of stuffing them makes them so much easier to deal with on a daily basis. It's completely irrational to be afraid of a billboard, a piece of mail, or a tv ad. I know that in my head. It's why I was stuffing everything down. It's too irrational to deserve being voiced. It's much easier to be angry. To blame everything except what's happening in my own head.

Denying irrational thoughts doesn't eradicate them. It reinforces them. Getting rid of them means accepting that the thought is real, and debunking it. I know this, but sometimes I get caught up in the feelings and stop listening to myself. I just feel.

Change requires constant monitoring of my thoughts. I requires that I debunk untrue thoughts and that I reinforce accurate thoughts. That's the only way to get past this.

I was never in danger driving to work, well no more danger than anyone else on the road is in on a given day. I was never in danger while watching TV or getting the mail. I must remember to reinforce those accurate thoughts to make it harder for the irrational ones to get through.

Clogged, Stuck, Trapped

So, my PTSD has been flaring up over the last several months. I know that my first trigger was the ER episode. I thought I had handled it well. I thought because I could watch the episode later that I was better. What a crock, it was just my brain faking me out again.

Then, the billboard was put up on the road I take to work. Every morning, I see that sign on the road. A few weeks later, a new billboard was put up on the road I take home from work. Great, now they've got me coming and going. Then they started their direct mail campaign. It's looking me in the eye from my mailbox when I get home. Then they started the TV ads. This week, it made the front page of the local paper. I feel bombarded and trapped. I can’t get away from the reminders.

"It's a suite experience!"

All I can think is its dangerous.

Watch out.

Don't go there.

It's NOT SAFE!

Run!

Trapped!

Hide!

Fear!

Escape!

Pain!

I'm anxious, edgy, and fidgety. I’m not sleeping well at night. I had still been keeping the nightmares at bay, but last night they came back with a vengeance.

I realized things weren’t quite right back in May. I told my husband that I NEEDED to go away on vacation. I thought a change of scenery, a change of routine would help, and it did for a while. But, like always, it was a temporary fix. A few weeks ago, he told me, “you just don’t seem like yourself”. The warning lights started flashing bright green and red. I’M BACK!

I don’t want you back. I want ME back. I thought I had conquered you. Why won’t you leave?

I’ve lived with PTSD my entire life. My father is a Vietnam Vet. I was born only two years after he completed his second tour of duty. I didn’t know what it was called, but my memories are loaded with memories of my father’s struggles with PTSD. I watched him have flashbacks. I watched him fly into a rage over something that should have been trivial. I lived with his skewed perceptions of the world, of safety, of his belief structure.

And, now I struggle to make sure I don’t create the same environment for my daughter. I’m in counseling for her and my husband. I sought help to break the cycle of this illness. I will not allow my home to be a place of fear and anger.

My counselor thinks that this is old stuff. I have to find a way to get past the state of fear that I lived in as a child that the trauma of my daughter’s birth dredged up from the depths of my mind. I must find a way to find safety within myself because the outside world will never be 100% safe.

I must not fail.

Why can’t I just get away from all of this?

My 20 year high school class reunion is coming up in August. My husband and I have decided to attend, so I’ve spent the last couple of weekends, blame Stacey and Clinton from TLC’s What Not to Wear (my husband does), looking for a dress to wear to the event.

It’s been difficult to find a dress. To start, I’m a larger than average girl. Not a lot larger, but large enough that I can’t fit into the dresses in the regular misses department at the stores. Therefore, my selection is pretty limited. Added to that, I was a wall-flower in high school, and I don’t want the dress that I buy to reflect that part of my past. I’m not that shy, scared girl anymore. I’m a wife and a mother. I own my own home. I have a career that I’m good at and enjoy. I’m a PTSD survivor. I want a dress that has people seeing the confident woman that I am now. I want them to see that I’m not shy and retiring, but willing to put myself forward the way I am now acknowledging my own faults.

I had bombed out at 12 different stores two weekends ago. I tried on approximately 80 dresses, but nothing hit all of the right notes. I’ve spent the last week grumbling about it to my co-workers. It was so frustrating to have one little thing wrong with so many dresses.

So, last weekend I dragged my husband to the local Macy’s store. We went through the entire store, and grabbed every single dress they had in my size (between 30 and 40 dresses total). I tried on sleeveless dresses, short sleeved dresses, and long sleeved dresses. I tried on casual sundresses, work type dresses, cocktail dresses, and even mistakenly tried on a prom dress. (We were just grabbing, not really looking at the dresses.) I tried on dresses that I would typically never consider. I’m pretty modest, so I don’t wear sequins, tight, or sleeveless clothes. However, given my insatiable desire to find the “right” dress, I ignored all of my own rules. So, I started trying all of these dresses on in the dressing room. I showed my husband each and every one of them. One of them had my husband’s jaw hitting the floor. It was like va-va-voom – totally sexy, slinky, sex-kitten dress, and I looked GOOD! Actually, I looked gorgeous. I’ve never seen myself like that. I’m not ugly, but I’ve never thought of myself as pretty. Anyhow, it just happens that this dress was on clearance for $40, so I decided to go ahead and buy it.

Monday morning rolls around, and I’m talking to a couple of co-workers about finding this great dress. I told them that my husband’s going to get a sitter, so we can go out for my birthday next month, and he’s even thinking about springing for a hotel room. In my mind it was a pretty innocuous, non-triggering conversation to be having, when Chantel says, “woohoo, baby number two making night”.

AARGH! I’m talking about a dress, not making baby number two. I’m not going to intentionally have any more children. My husband and I have decided that neither one of us in comfortable with the risk. My pregnancy and delivery were complicated. In fact they were more complicated than my hospital had ever seen. It’s not like they were just a little bit more complicated than usual, we’re talking almost off the charts complicated. The odds of having that many complications in a single delivery are higher than the odds of winning the lottery. For me, the risks of dying are very real. When your medical records record a conversation about placing mom in the ICU, she’s not making up stories, or exaggerating about nearly dying when giving birth. It’s rare, but moms do sometimes die. There’s no point in giving birth to another child when my odds of not being there to raise that child are so high.

Anyhow, I’m just frustrated. I know Chantel doesn’t know my birth story. I know she didn’t mean anything bad by saying this. She’s working under the typical assumption that most people have their children two to three years apart. It’s just that the casual way she said it kind of tripped me up a bit.

I’m so much better than I was. This experience has started fading into the background. It’s still there. I know I still filter every new experience through it, but it’s not like it was before. I guess I’m just a little naïve in thinking that as my daughter gets older things will stop triggering me. I keep thinking that it’s in the past, and yet I’m having a conversation about a sexy dress, and birth pops up. When are people going to stop talking about it? How old do I have to get before it stops being a common topic of conversation. It’s not that I can’t talk about my daughter’s birth. I do talk about it, but I don’t see the need to go into details with every Tom, Dick, or Harry that walks into my life.

Birth Rape Rears its Ugly Head Again

After two years of living with the consequences of my OB’s actions I really should know better than to Google Birth Rape. It seems like every 9 – 12 months something stirs up the discussion fires on this topic. This time, Café Mom seems to be the instigator. There’s poll, a forum, and a journal / blog post on the topic. Now, at least one L & D nurse is weighing in on the subject as well.

There seems to be some misconceptions about what women are referring to when they define their birth experience as a birth rape.

1. Just because someone, a nurse, midwife, or doctor, breaks your water doesn’t make it a birth rape. Just because birth is painful doesn’t make it a birth rape. Just because you have a cervical check doesn’t make it a birth rape. Most of the time, healthcare providers ask permission to do these things. If you consent, it’s NOT rape.

I had my water broken, but I consented. That procedure was not birth rape. I had an IV, but I consented. That procedure was not birth rape. I had several cervical / vaginal exams, but I consented. Those procedures were not birth rape. I was asked to lie on my side during the majority of my labor, but I consented. That was not birth rape. I had continuous fetal monitoring and EFM, but I consented. Neither of those were birth rape. I had a vacuum assisted delivery, but I consented. That was not birth rape. As long as you consent to the procedure whether it’s verbal or written it’s not rape. Just like when I consent to having sex with my husband it’s not rape.

2. Women who call it birth rape deserved what they got. After all if the baby has to come out, so whatever is done in that process is acceptable. If you go to the hospital as long as someone with an ID badge does it to you it’s okay.

Where I live, we have a Patient’s Bill of Rights. Competent patients have the right to decline any and all medical procedures. Competent patients have the right to be told what their diagnosis is, what the treatment options are, what are the risks associated with those options, and allowed to make their OWN decision. Therefore, the doctor, midwife, or nurse is not always right. They don’t have the power to force a woman to submit to procedures that she doesn’t want. They don’t have the right to coerce a woman into submitting to any procedures, and they don’t have the right to abuse their patients.

3. Women are just whining because they didn’t get the experience that they wanted to have.

What? There are a lot of things about my daughter’s birth that didn’t go the way that I wanted. I didn’t want to be induced. I wanted to go into labor on my own. However, complications prevented this from being possible. Did that traumatize me? NO! Did that result in a need for counseling? NO! It was simply a disappointment. Do I label any of those procedures that I didn’t want, but consented to, as birth rape? ABSOLUTELY NOT!

4. If it’s a rape, why don’t you report it, and have the perpetrators prosecuted?

I did report the actions of my doctor. I reported them to the State Medical Board, the hospital where he practices, and I sent him letter. However, the State Medical Board has the same attitude that a lot of women on this forum have- he’s the doctor, so he’s right. My report was denied because I didn’t have enough evidence to prove it. Doesn’t that sound like a typical rape case? It’s my word against yours. It doesn’t make what happened to be less truthful or less traumatizing. As to why I didn’t sue him, well like a lot of rape victims, I didn’t want to re-live it. I didn’t want to sit in the same room with him. I didn’t want to bare my emotions, and mental issues in front of a jury that doesn’t believe that birth rape happens.

5. You don’t develop mental issues from a bad birthing experience.

Actually, I did develop mental health issues as a result of his decision. I spent 18 months in counseling for PTSD. PTSD doesn’t go away. You learn to live with it, you learn to cope with it, but it doesn’t go away. I’ll have these scars for the rest of my life. They’ll gradually fade with time, but they will never go away. I live with nightmares, flashbacks, dissociation, and anxiety. I have panic attacks when I go to the doctor. I have had flashbacks during sex – what a mood killer. I’ve denied my husband sex because I’ve been terrified of having another child. My marriage was nearly destroyed because of the severity of my symptoms.

6. So what do I call my birth rape?

For me, birth rape refers to a specific procedure at a specific time that was performed without my consent.

My daughter was born at 11:32 pm. Approximately 15 minutes later my doctor asked the nurse to tell him when ½ hour had passed after the baby’s delivery. At that point in time, he knew that the placenta wasn’t detaching properly. Did he discuss this with me? No. He just kept biding his time waiting to see if it would change. Shortly thereafter, I notified the doctor that his ½ hour was up. Did he tell me then, that there was a problem with the placenta? No. He attempted cord traction to get the placenta to release. The umbilical cord tore off the placenta leaving the placenta attached to my uterus. Did he notify me then that there was a problem with the placenta, and offer me the opportunity to choose between treatment options of having him try to manually remove it or have it surgically removed? No. He just shoved his hand inside me, and tried to pull it out himself. Why wouldn’t I have seen this as a rape? He wasn’t saving my child. She was already born. He wasn’t saving me since at this point he didn’t see this situation being emergent. I was competent, and capable of consenting. He chose not to allow me to consent.

The pain of this procedure was extraordinary. It’s beyond the realm of anything I had ever experienced. It sent me into a place where I was incapable of providing consent for any additional procedures. Even though I didn’t consent to the D & C, even though I didn’t consent to the re-installation of my uterus, even though he spent almost an hour with his hand elbow deep in my hoo-ha trying to shove my uterus back into place, I’ve never considered those procedures to be birth rape. The situation had become emergent, I was mentally incapable of providing informed consent, and I was at the mercy of his skill, knowledge, and competency.

You see, Birth Rape is about power and consent. It’s not about sex. It has nothing to do with sex. In some ways, birth rape is worse. You’re in a place and surrounded by people who are supposed to keep you safe, but you’re not. You can’t advocate for yourself if they don’t tell you first what they’re going to do. You can’t fight for your rights when they deny them. My doctor wasn’t evil. He wasn’t trying to harm me. He got caught up in the complications, and all he saw was a problem. He forgot that I was a person, and only saw the complications.

Birth rape is real. Birth rape is evil, and eventually it will become prosecutable. Right now it’s impossible to get anyone to believe you.

Sometimes Surviving is Enough

While we were on vacation last week, I listened to a song on the ipod – Alive off Meatloaf’s Bat Out of Hell 3 album. I don’t listen to it often, but it’s my favorite song off of that album. The album was released when I was pregnant. Every time Alive was playing, Peanut would dance in my belly. I don’t know why, but she really seemed to either love it or hate it. It’s an interesting song. It celebrates surviving.

My counselor asked me once if I was proud / gave myself credit for anything going well with Peanut’s birth. I’ve struggled with giving myself credit for anything that happened during Peanut’s delivery. As far as I’m concerned the whole experience was a failure. I failed, the doctor failed, the anesthesiologist failed, the nursing staff failed, and my support people failed. There’s nothing but failure from my point of view. However, when I listen to this song it makes me start to wonder if it isn’t enough to just survive.

The doctor’s didn’t kill me off that night.

I didn’t give up, and let myself die that night.

My husband didn’t walk away from our marriage after that night.

I'm a runaway train on a broken track
I'm a ticker on a bomb that you can't turn back
This time, that's right
I got away with it all and I'm still alive
Let the end of the world come tumbling down
I'll be the last man standing on the ground
As long as I got blood rush through my veins
I'm still alive
Holly Knight, Jon Bon Jovi, James Michael, Andreas Carlsson, Richard Samborra, Desmond Child, and Andrea Ramanda



I’m not quite ready to rejoice in my survival, but sometimes survival is reason enough to be proud.

ER - The Final Episode

I bet you're thinking you stumbled across the wrong blog. I don't usually write about frivolous things like the latest TV show. However, it's pertinent in this case to my healing.

I remember watching the first episode of ER. I was hooked. I loved the interplay of Dr. Greene, Dr. Ross, Dr. Benton, and Dr. Carter. So many things in my life have changed since that day, but that has been one of the constants - Thursday night at 9 pm. I haven't watched consistently in a long time, but I decided to watch last night's episode.

It started off okay. They got to the twin labor and delivery, and I was okay. (I can finally watch re-enactments of the happy deliveries without freaking out.) I watched them deliver the second baby, and I was still okay. The first gush of blood came out of mom, and I started to get a little tense, but I was okay. The second gush came, and I'm starting to think maybe I should switch to something else, and then... gush number 3, uterine inversion, mom starts losing consciousness, call for blood, start IV's... I jump off the sofa, grab my daughter, and run for the stairs. I rush to get her put to bed, and run back downstairs to change channels before the commercial is over. I'm shaking, edgy, panicking, and trying desperately to calm myself. I was up half the night crying.

Right after Peanut was born, I kept asking my husband and best friend questions about my birth. I have no visual memories after the attempted manual removal of the placenta. I have some memories of sounds, but no pictures. My nightmares were terrifying to me because I didn't have the pictures, so I kept looking for them to give them to me. I'd ask, What did they do? What did it look like? Anything to get a description of what had gone on. I've accepted this lack of visual information. I've gotten used to the missing time frame. Having that visual experience last night totally has me freaked out.

I'm achy, hollow, anxious, edgy, and exhausted. I want to hide in a small dark place, and forget what I saw. I want to forget the fear, the anger, the panic. It was like they wrote MY story into the script. The baby was in the warmer, Dad standing to one side watching, and it all falls apart.

I haven't been this bad in a long time.

I HATE feeling like this. I HATE being this new person. What did I do to deserve this?

I wrote this on Friday morning. I'm glad to say that by noon, I was feeling better. Still edgy, but not jumping out of my own skin edgy. By the time I got home, the stranglehold was gone. I could think about other things, talk about other things, be myself.

I sometimes forget how far I've come. It came in such small, baby steps that you miss where things began to change. Despite my being triggered, I'm grateful to realize that this experience doesn't control me the way it did in the past. Within 36 hours most of the intrusive thoughts were gone. I didn't have another nightmare, and the flashback was only in the immediate time frame of being triggered.

My husband wants to delete the recording from the DVR, but I won't let him. I know I have to watch the entire thing. I won't watch it today, and probably not tomorrow, but in the future I need to see it. In order for me to be free, I have to face it.

This was my story. It may have a few tweaks, but it's the story I live with everyday.

De-Briefing Tool (Part 1 Question 2)

What happened in the events leading up to the birth?

My pregnancy was never easy. It was unplanned. My husband didn't want to be a father. He sucked it up, and accepted it, but he was never supportive, excited, or happy about it. It was stressful knowing his feelings on the subject, but I just kept plodding along.

At 13 weeks, I had a scare. I had some spotting over the weekend. About the time I thought I should go get it checked out, it stopped. I went to the doctor right away on Monday morning. He did an ultrasound, figured that some blood got trapped behind the placenta, and put me back on the routine prenatal visit schedule.

At 19 weeks, I had my "big" ultrasound. They diagnosed me with partial placenta previa. Since it was still early, I knew there was a possibility that the placenta would move, but I started researching c-sections. I put off my childbirth classes until I could find out if it had moved. It seemed silly to spend all of that money only to end up with a c-section.

At 27 weeks, I went in for my partial placenta previa follow-up ultrasound and the one hour gestational diabetes screening. That night, the doctor called me at home. I had failed the one hour test, and had to schedule the three hour test. I failed that one too, so off to the dietitian I went. No candy, no cake, no ice cream, for Pete's sake I'm pregnant, but I can't eat anything but vegetables and meat. No more eating cereal for my bedtime snack. No more drinking OJ. Nothing. It sucked. The good news was that the placenta had moved, so I'm back to looking at a vaginal delivery. This is also the time when the doctor first mentioned that he "didn't think I'd make it to 40 weeks". What a crock, of course I was going to 40 weeks. I had been 3 weeks late, and I expected that peanut would be 2 weeks late as well.

Because of all of the GD issues, I started seeing the doctor weekly instead of bi-weekly. We finally got to week 33, and he told me that I could skip week 34's visit. Woohoo! I went to my family baby shower, and after I got home I noticed that I was really swollen. My legs were the size of watermelons. My husband hounded me to call the doctor, so Monday morning, I give him a call. I left a voicemail for the nurse, and not an hour later, she calls back. COME IN NOW! I'm thinking, it's just some swelling. Everybody swells up at the end of their pregnancy, what's the big freaking deal? But, as a dutiful, if resentful, patient, I trot my 34 week belly into the clinic. I walk in, and got on the scale. I gained weight. Finally, 34 weeks had gone by without me gaining any weight. I'm thinking I'm finally acting like a pregnant woman. I sit in the chair, they take my blood pressure, and it's high - too high. All of the sudden, he's telling me to go immediately to the hospital for an NST - what the heck is that? I drive up to the hospital parking lot, and call my husband in tears. I don't know what's wrong. I'm at the hospital. They're going to do some tests. I'm scared out of my mind. He tells me he's coming, and I head up to Labor and Delivery. I get to the desk. No one from the clinic has called, I'm trying to remember what the doctor said to have done. They get me into a room, hook me up to the monitors, and I just sit there alone, staring at the TV, crying, and hitting the joystick thing-a-ma-jig when peanut kicks. My husband calls, he's at the hospital, but can't find me. They didn't "admit" me as a patient, so the reception desk is useless. He finally makes it up to the floor, and into the room where I am. The doctor comes in, and says no more work, stay home, keep my feet up, no anything. Great - NOT. He says they'll induce, but they want me to make it to 37 weeks. He's kind of vague, and my husband hates him on sight. I'm frustrated because this wasn't part of my plan, but I'm a good girl, and head home.

My husband arranges for my in-laws to take the dogs for the remainder of my pregnancy. They're German short-hair pointers, so extremely energetic. There's no way for me to stay off my feet if they're at home.

I hang out at the house, watching Dr. Phil and Oprah. I'm bouncing off the walls with boredom. I feel like I have nothing to talk about. My husband keeps asking me for answers on when the baby is coming, but I don't know, and the doctor is vague. I only get out of the house twice a week. Once for the doctor appointment, and once for the NST.

A couple of weeks go by, and finally we get my induction date. My best friend comes to the house to help me with my "birth plan". What birth plan? This isn't the spontaneous experience that I wanted. I'm going to be hooked up to every monitor imaginable, there are no more choices to be made. I tell her that all I want is to walk out of the hospital as a healthy mom with a healthy baby. Whatever we have to do we'll do.

Memory of Pain linked to Childbirth Experience

http://www.foxnews.com/story/0,2933,508961,00.html

I saw this article the other day. I found it interesting that women who have rotten birth experiences tend to remember their pain at the same or a worse intensity than women with positive birth experiences. It only takes me moments to remember the pain I experienced. It definitely hasn't diminished with time.

De-briefing tool (Part 1 Question 1)

I found a link to a blog that defines some questions for de-briefing from your child's birth. I thought that they were pretty good, so I thought I'd answer them on here.

Part 1: How was your birth?

1. What was your birth like for you?

Well, my pregnancy wasn't easy. I felt isolated before I ever got to the delivery room. When I took my childbirth education class, I was the only person who hadn't gained any weight. I was the only person who had gestational diabetes. I was the only one who had been forced to consider a c-section. I knew then that my pregnancy was far from normal. The last four weeks leading up to my delivery were frustrating. I hated being stuck at home. I hated not working. I hated having my dogs shipped off to the in-laws because they were too much work for me to take care of them. I hated being trapped. I hated not being able to eat. I hated being pregnant. I hated knowing that I wasn't going to have the birth I wanted. Don't get me wrong, I was resigned to the complications. I acknowledged, and still acknowledge, that they were real. I was willing to do whatever it took to have a healthy baby, but it doesn't make it any easier to handle the emotions of watching your dreams fade before your eyes.

For me labor wasn't that bad. Since I had resigned myself to the induction, the tubes, the wires, the monitors, etc. I didn't find it to be very traumatizing. It went the way I was expecting it to happen. I was trapped in bed, but I knew that. I had lots of tubes, but I knew that too. There were monitors everywhere, but after having NST's for the four prior weeks I knew about those too. Truthfully, I really didn't find it very painful. That may piss some people off, but to me it wasn't that bad. I was frustrated that information didn't seem to be flowing smoothly between the nurses at the hospital and the doctor at the clinic. I was also frustrated about justifying, arguing, whatever you want to call it with the anesthesiologist over the epidural. However, neither of those things contributed to my PTSD. I was irritated that the nurse didn't believe me when I told her the epidural wasn't working. It's not like I wanted her to do anything about it other than mention it to the doctor. I remember the contractions piling one on top of the other. It seemed like there was no break from them, but I just concentrated on the fluorescent light fixture, and breathed through them. I remember one of the nurses offering to dim the lights, and I was pretty emphatic about wanting them left on. Other than the bathroom, the only thing I could see while lying on my right side was the light fixture. I needed the focal point to center my breathing to ride over the pain of the contractions. I remember feeling like it was time to push. It seems weird that everyone believed me when I said that, but no one believed that the epidural wasn't working. I pushed, and pushed, and Mel asked me if I wanted help. I told her yes, and she told the nurse the next time she came in. It seemed to take forever for the doctor to show up with his handy dandy vacuum. I remember him asking if I was okay with that, and I answered yes. I remember tearing and the feeling of relief when my daughter slid out. I remember being exhausted and collapsing on the bed. There were several frustrations and some irritations, but overall it was about what I had expected. Not what I wanted, but what I resigned myself to when I realized that the complications had derailed my plans.

The real problems started after my daughter was born. I remember thinking, wow, I'm a mom. I knew it was going to happen, but there's something kind of odd about having them place a new baby in your arms. I was relieved, anxious to spend time with her, and introduce myself. However, I was completely repulsed by all of the goo and blood covering her body. At that point, I really wanted them to clean her up. I started feeling woozy. Just a little bit off. I was about to ask a question about the way I was feeling when the nurse asked if I wanted to hold the baby. I said no. I knew something wasn't quite right, and I was afraid to hold her at that time. Mel brought her over to me, and I reached out my hand. PAIN! It shot through my whole body. I've never experienced anything like it. Everything went black. The pain consumed me. It was in me, around me, smothering me. I couldn't scream. I was trapped by it. I clawed at the sheets. I tried dragging myself away from it, but I lost the battle. The pain was inescapable. I heard snippets of conversations. We're going to need to go to surgery... Where the hell are they... What's taking so long... It's about time you got here... The sides of the bed snap up. I'm moving fast down the hallway. The lights were beaming down on my eyelids, they're moving me to a hard surface, they're poking me, and then nothing.

Some one's talking to me. I can't focus. I just go back to sleep. I hear people talking again. She won't be able to breastfeed. I can't stop shaking. They're piling blankets on top of me. What happened?

How do we change the culture of birth?

Sunday morning, I got up early with Peanut and the dogs. We all settled down in the living room, and I turned on the TV. There's not much to watch on Sunday mornings, so I chose a re-run of 90210. It just happened that this episode focused on the birth of Steve's daughter. I found myself struggling to watch it because it hit too close to home.

Supposedly, Steve's wife needed an emergency c-section. The doctors come tearing in, ignoring Steve's requests for more information, and hustle his wife out to the operating room. A bit later, the doctors come out to tell him he has a baby girl who's in the NICU, and demanding that he signs some consent forms or his wife is going to die. He tries to ask questions, the doctor brushes them aside, and demands he sign the paperwork. They don't discuss options, diagnosis, or risks. Just sign the blankety-blank thing. One of the next scenes is in the hospital room. His wife's coming around, and is asking questions, but Steve doesn't really know. He just keeps giving her this vague answer, you lost a lot of blood.

There's so much wrong about this episode, but there was no outcry when it was first aired. No one yelled and screamed about informed consent. No one freaked out over women not being told exactly what had happened. Yes, it's a TV show. They're allowed some dramatic license, but our culture is so accepting of this type of treatment being okay.

It's not okay. Women aren't incubators. We're autonomous human beings choosing to reproduce. We're entitled to true informed consent. We're entitled to respectful, non-coercive information about the complications. We're entitled to time to process, and choose a course of action. However, that's not going to happen as long as we, as a culture, continue to allow doctors to get away with this type of treatment. We'll classify it as emergent, and batter everyone down until they submit.

So, how do we change it? The attitude is so pervasive, that it's like putting out a forest fire with a garden hose. How do we open up the minds of pregnant women, their support people, and the nurses, midwives, and doctors who are caring for them?

Anniversary Effect

Anniversaries – I thought that my daughter’s birthday would be the hardest anniversary for me to deal with, but I’ve noticed that I’m not struggling as much with that specific day as I am in the 3 – 4 months leading up to it.

I was talking to my husband the other weekend, and I made a comment about my co-worker saying that I was making a big deal out of her birthday. (I’ve been planning her party for a while now. I want the invitations to be just so. I want the food / menu to be planned out in advance, and I want it to fit the theme of her party. I’ve started buying the favors for the kids. I’ve researched the local parks, to try and pick a location.) My husband said that I’m getting a bit obsessive, and I did the same thing last year. However, he did say that I’m better than I was last year, so that’s good – right? To me, I’m not planning a monster party. I am planning to make all of the food ourselves. I’m planning to invite the same people who were there last year – grandparents, aunts & uncles, cousins, and close family friends who were there the night that peanut was born. To me, this isn’t a hire a clown, or face painter, or pony, over the top kind of party. I’m not inviting her entire class from daycare – 14 2 year olds running around – YIKES! I want to have it at a local park, but that’s because I want the kids to be able to play on the playground instead of having games. Since peanut is only going to be two, I think games are kind of pointless.

Anyhow, that conversation has been bothering me a little. It’s been hanging out in the back of my mind like a tickle in your throat that won’t go away. I realized that I started planning the party at the same time of the year that I started experiencing complications during my pregnancy. This obsession, compulsion, planning kick is completely the result of the anniversary of things starting to go to hell, and I’m trying to CONTROL what’s going to happen in the upcoming months since I was completely out of control during those months of my pregnancy.

Isn’t that kind of weird? Oh well, it’s “better than last year”, so I guess I’ll have to ride it out again. Her birthday doesn’t seem to be as horrible as the months leading up to it. I guess by that time, I’m emotionally exhausted from everything else. The good thing about that is that I can actually somewhat enjoy her party. I’m also not stressing about her party falling on Mother’s Day this year, so that’s a huge bonus. I guess I’m starting to be able to separate my experiences as a mom from my experience with her birth.

Besieged? You don't know the meaning of Besieged.

I read a blog post the other day by a doctor talking about medical (doctor) writers. She happens to really like a specific author, and the quote that she included in her blog was about a doctor feeling besieged.

Besieged is kind of a triggering word for me. I felt besieged at the hospital. Therefore, it’s not a word I’m comfortable hearing in this context. I read through the entire post, and looked the word up in the dictionary. The specific meaning of the word in this context referred to being overwhelmed. I can understand a doctor feeling overwhelmed at times. There are times I feel overwhelmed at work. Everyone from the burger slinging cook at Mickey D’s to the President of the United States will feel overwhelmed from time to time. However, there’s a huge difference between feeling overwhelmed and feeling like your castle walls are being breeched.

I don’t think people really understand what being besieged feels like any more. When the army surrounds your castle, when the gates hang crookedly from the hinges, when the larders are empty, when the well has gone dry, when the foundation is cracked, when the attackers have you strapped to the rack, and your family, friends, and army are being slaughtered then you know the true meaning of being besieged.

This is the way I felt in the hospital. I was surrounded by medical personnel who were supposed to keep me safe, and instead I was nearly destroyed. My personal gates were violently breeched with no warning by the doctor. My soul was emptied, and my emotions had run dry. I felt like I was strapped to the rack with all of the tubes, monitors, and paraphernalia I was attached to, and being tortured by the pain between my thighs. My marriage was in tatters, and my brand new family was hanging together by a thread. I faced endless nights of nightmares. I faced flashbacks during the day. At that point in time you have to make the choice to pick up the pieces, or wallow in the pain, fear, anger, failure, shame, and rage.

I made the choice to reach my hand out for help. I had to rebuild the foundation of my being one stone at a time. I had to learn how to live again, how to love again, and how to have fun again. I had to learn to harness my anger and control my rage. I’ve had to face the reality of my fears, and build a tomorrow I believed was gone. I’ve learned to cope with the anxiety, and I’ve grown stronger.

I’ve been besieged. I’ve been betrayed. I’ve been violated. My new castle walls may not be pretty, they’re pitted and pocked by the previous battles, but they’re much stronger than they were.

In honor of Valentine's Day

My husband has been really great during this journey. It's not one that either of us intentionally signed up for, but he's handled it far better than I expected. He's the one who recognized when things were spiraling out of control. He's the one that prodded, and poked, and harassed me into seeking help. He's the one who kept poking and prodding and harassing me into not accepting that medication was going to solve everything. He's been willing to do whatever it takes to get me healthy and happy again.

One night stands out for me. It was the first night that he was staying home with our daughter so that I could have a night out with the girls. He came home with a present. He sat me down on the couch, told me that he loved me, gave me the present, and told me that he wanted us to recommit ourselves to each other.

You see no matter what, he loves me. It doesn't matter to him if I'm fat or thin. If I'm damaged or normal. He accepts me the way that I am right now.

It's an amazing feeling. I can't begin to tell anyone how important or essential that has been to me over the last 21 months. Whatever it takes, he's there.

I wear the watch that he chose for me gladly. It's not my style. I'd never have picked it out myself, but it reminds me that I'm never alone. He got a matching one for himself, and it's just one more sign of our commitment to one another. We wear them like our wedding bands.

So, thanks for being there for me. I love you.

How Far I've come

As you can see, I'm not posting as much. Things have been much better lately. I was talking about the journey that the PTSD has taken me on the other day. I don't often take the time to reflect on how far I've come in this journey. I get so caught up in what's happening each day, that I just don't take the time to think back to where I was. There are some days that I almost feel like the old me. I've resigned myself to the fact that I'll never be who I was, and I'm beginning to make peace with what I think I'm capable of becoming now. I really think that I'll end up being more than I ever would have been if I hadn't experienced this.

I had a uterine inversion in addition to several other post-partum complications. At first, I coped by running away from what happened. I believed that if I ignored it, it would go away. I took my daughter out of the house every day. I believed that if I acted like a "normal" mom that no one would know that I spent hours at home crying when my husband was gone. Also, when I was out of the house it was easier to pretend that I was "normal".

It wasn't until my six week post-partum appointment that I really started to notice that my head wasn't quite on straight. It wasn't until the doctor touched me again that I had the first flashback. The feeling of his gloved hands touching me down there sent me back to the hospital room with his hand / arm elbow deep in my hoo-ha. The exam, just a typical exam, nearly brought me to tears. When I was in the hospital, I didn't get a good explanation of what had happened to me, and given the extreme trauma my body and mind had gone through, I didn't push for answers. I was told my uterus turned inside out, the placenta came out in 20 pieces, and I lost a lot of blood. None of those things are helpful at explaining /understanding what had happened. At my six week appointment, I finally had the wherewithal to start asking questions about what had happened. It was the first time I was told I had a uterine inversion, placenta accreta, and post-partum hemorrhage. That information sent me on a spiral of obsessively researching the complications. Every chance I had, I'd be reading about it, researching it, looking for the rates of recurrence, etc. It became my life for the two weeks I had left of my maternity leave.

My husband couldn't take it. He hated the obsession, so he started pressuring me to see the doctor. I went back to my old family practice doctor, not my OB, because I thought I had PPD. Actually,he's the one who suggested the PTSD diagnosis. We tried medicine, but I was still too obsessive. My husband kept hounding me to get help. He believed I needed more than just the drugs, counseling would be more effective, and he was right. I went back to the doctor, and asked for a referral to a counselor. At that time, I was having nightmares every night. I was having flashbacks a couple of times a week. I was obsessed with what had happened. I did the bare minimum when it came to work, to taking care of my daughter, to being a wife, but every other moment was spent thinking about, re-living, or reading about the complications. The counseling helped. It took months of seeing someone.

The first thing I had to work on was my anger with my husband. I hated him for allowing the doctor to do that to me. He was supposed to rescue me, protect me, save me, and instead he allowed the doctor to violate me. It took quite a while before I got past that. The next thing was learning to like sex again. I never told my husband, but, for the first six or seven months, I had flashbacks during sex. (I found the procedures they had performed on me to get the placenta out and reinstallation of my uterus extremely violating since they didn't tell me what they were doing before they started the procedure.) The feeling of having his penis inside me reminded me of the doctor's hand being inside me. I hated it. I couldn't get into it, and it hurt as a result. The pain fed the flashbacks, so it took a while to get to the point where I could look at it as just being close to him and not as something I "had" to do to keep him happy. After that, I still struggled with flashbacks whenever I gave my daughter a bath. I struggle with going to doctor appointments at the clinic, and it took me 14 months before I could walk back into the hospital where she was born. I'm just now starting to feel like the "old" Me.

I'm just starting to regain my sense of purpose, my ability to focus at work, and my ability to work through problems at home. There are still triggers, things like a friend being induced or talking about what happened with medical personnel, can still have me struggling. I know how to monitor myself for problems now, and I go back to counseling for a tune-up when I need one. It took me a long time to realize / accept that the complications and the procedure didn't cause my trauma. Yes, it was painful. Yes, the procedures they performed are vile. However, it was the lack of communication when I was still capable of understanding what was happening that caused the trauma.

So, now I found a new doctor, one who really listens to me. This doctor is a family practice doctor, so both my daughter and I are treated by her. That way, I see her more often than once a year, and she knows how to handle my needs. I've been really up front about needing a lot of communication. She knows that I need her to tell me what she's doing when I have a pap smear. She knows that I need to be highly involved in medical decisions. It helps me to deal with the fall out of the poor care I received during my daughter's birth.

As for having more children, if the only complication I'd had was the inversion, I'd be pregnant again right now. All of my reading /searching has led me to believe that the odds are in my favor of that not happening again in a future pregnancy. There's a support group for uterine inversion survivors on Yahoo that has so many positive stories of having second children that I could get past it. The problem for my husband and me is the accreta. The only study I've found that talks about the recurrence rate puts it at40%. I just can't get past those odds. I've met with several doctors. All of them have told me that I can have another pregnancy. I've even been told that they'd prefer that I deliver vaginally. They tell me that they can make it safer in the future. They would make sure the surgical team is accessible immediately.They would make sure to talk to me. They'd make sure I was treated with kid gloves. But I keep coming back to the 40% odds of having it happen again. I just can't risk the daughter I have growing up with out a mother because I chose to give her a sibling. She needs a mom. She can have a great life with or without a sibling.

I've come a long way, baby!

Breastfeeding & PTSD after Chidlbirth

I've been struggling with this for several weeks. I haven't written about it because I'm still not sure what to say. It all started with this article. I saw it on my SOLACE support forum. I fell into the 4 1/2% of women who chose formula feeding as a result of their birth trauma / PTSD. I was okay with that decision at the time, and throughout my daughter's time on formula. Why I'm looking for answers now, I don't know.

I started haunting a breastfeeding / formula feeding debate board. I know my counselor would be crawling up my butt about this, but I think my brain is trying to process something. I don't know quite what yet, but it's definitely working on something. I felt compelled to respond to a post on there about formula feeding being selfish. I get so frustrated that no one admits that the decision to breastfeed can be just as selfish as choosing formula feeding. That article cites that the other half of women who experience PTSD / birth trauma choose to breastfeed to "make it up to their babies" or "prove that they're a real woman". Those aren't exactly selfless reasons to breastfeed. Why are formula feeders labeled as selfish, while breastfeeders are labeled as being better? Anyhow, it got a lot of people's backs up. I'm not typically a stir the pot kind of gal, but I seem to be compelled lately to behave in this atypical manner. No one seems to know how to respond to my belief that mental health issues are a valid reason for making the decision to formula feed. I seem to post, and the thread just dies.

Do women really believe that birth is this hunky dory, happy go-lucky, joyful experience all of the time? Why can't we face the reality of birth? Most of the time it is flowers, sunshine, and joy, but sometimes it's like finding yourself in the pit of hell. At least that's where I found myself. I wish I could say it was a happy time for us, but my husband and I both had issues to work through. We both struggled in those early weeks. My husband didn't hold our daughter until she was almost 8 weeks old. I had problems with nightmares, flashbacks, and being touched. Those weeks were horrible.

Anyhow, I'm still trying to figure out what I'm looking for. Maybe I'll find it, maybe not, but I have to exhaust my options.

Surrender, part 2

I don't know what's going on, but it seems like I'm getting bombarded with thoughts about surrender. Not two days after I posted my first post on this did I use it as an example for another mom, and since then I've used it another couple of times. Who knew that this concept would strike a chord with so many women?

Anyhow, I wanted to utilize another analogy for discussing the topic because it came to me on another forum.

I've had to work through my thoughts on this. I've learned to view my pregnancy and delivery as a castle under seige. Each time some complication was discovered, the enemy, I mean medical staff, advanced on my position. Each time, I lost a little bit more ground. By the time I arrived at the hospital, I had only a tiny square of land to fight on, and as the delivery grew to a close, I lost even that. You see I had to make peace with the concept of surrender. I surrendered to the medical professionals because it was the only way I could live. I surrendered to them because I was too compromised to continue fighting against the overwhelming forces.

What a way to think of the situation. My daughter's birth felt like I was under seige. Everyone taking away my choices leaving me with no or few options for protecting my people - daughter, husband, family, and friends- or myself. When surrounded by overwhelming forces, when your food stores run out, when your well runs dry, your choices are surrender or die. Is that a choice?

There's a certain amount of surrender that's inherent to pregnancy. Your body is not your own. Foods that you hated you suddenly crave. Foods that you craved suddenly make you ill. Your body changes astronomically from one day to the next. Your hormones take over, and you lose a small piece of yourself. It's not all bad. You become more than you were. You're ripening, filled, glowing, but you can't fight the changes.

At first, you believe the medical staff are your allies. You don't realize that they're lions in sheep's clothing until much later. They tell you that you have choices, that you're in control, that they work for you, but that first complication takes away a choice. The second complication takes away more choices. Pretty soon, you realize that it's all a lie. They've breached your castle gates, and the only choice you have left is surrender.

I still believe that there's power in surrendering. I still believe that choice holds the ultimate power. There are times to fight, and times to walk away. Birth was a time to walk away, and NOW is the time to fight.

The Power of Surrender

One of the things I’ve worked on is seeing what I perceived as my failures during my daughter’s birth as surrendering to the medical professionals. Surrendering is choice. Surrendering is recognizing that you’re in a losing situation, and making the choice to cut your losses. It doesn’t require that you like it, enjoy it, or are at peace with it. It doesn’t give the people who forced you into the position as pass or a “get out of jail free” card. However, there’s great power in making the decision to surrender.

So, when did my surrender occur? It happened when the pain consumed me. It happened when I realized that I was incapable of making decisions for myself. The initial moment of surrender came just seconds before the doctor tried to remove the placenta. It came in the moment where I told the nurse I didn’t want to hold my baby. At that point in time, I knew something was wrong, really wrong. I knew that I needed professional medical treatment. I couldn’t put my finger on what it was. I didn’t know the words to describe the way I was feeling. I didn’t have time to voice my concerns, but I recognized that without further intervention things were going to hell. While I recognize that I was surrendering to the medical personnel at this time, it doesn’t absolve my doctor of his decision. It doesn’t give him a pass on not communicating to me what he was going to do and why he was doing it. He still had a responsibility to communicate my diagnosis, propose a treatment option, and give me the opportunity to consent. Yes, things went to hell, but that doesn’t mean that he was free to do whatever he wanted to my body.

I also surrendered a second time. I surrendered to my fate, and that occurred when they rolled me into the operating room. I remember that moment, the feeling of giving up, of being willing to die, knowing that I’d given life to my daughter. I hate thinking back on it. It’s painful, scary, and hopeless, but it was surrendering. Even before I’d accepted this concept, I’d written about it. I wrote about the pain after my daughter’s birth just after she turned one,

The pain is all consuming. You can't think. You can't breathe. You can't hear what they're saying. You can't process what's happening. It wraps around you smothering you in a cloud of darkness and fear because you know it's not supposed to be like THIS. You can't form the words to question what's happening. You're sucked down into the black void of semi-consciousness not caring what they're doing to you because all you can focus on is the pain. It's the only thing that exists. They're pricking you with needles, people come running in and out, and someone straps a mask over your face. You feel the doctor's hand shoved all the way inside you. How the heck did it get there? The pain sucks you away. You struggle to breathe and continue to fight. Try to breathe through it, but you can't ride the waves. It's consuming your body. Don't quit. Don't abandon the baby. Keep fighting. Some comments break through. You can hear the anger and fear in the doctor's voice, and it scares you even more. But you're sucked back down into the depths of hell wondering what's happening. You feel the bed being wheeled down the hall. You sense the bright lights of the operating room beaming down on your eyelids, but the pain pulls seductively at you. Just give up. Stop fighting. Surrender to your death. Abandon your baby. Just let go. And then the anesthesia sucks all your thoughts away.

In the fourth sentence from the end, I wrote, “Surrender to your death.” Even then, I was recognizing that I had a choice to make. Even senseless, strapped to the operating room table, in agonizing pain, I had the power to surrender. It was my choice to give them, the medical personnel, the power to save me. It was my choice to submit to their will, it was my choice to accept the treatment that would ultimately save my life. Even when I was at my weakest, I had the power. When I felt like the biggest failure, I surrendered. When I believed all was lost, I submitted.

There’s nothing more powerful than making that decision. I surrendered to live. I surrendered to support other new moms. I surrendered to fight for patient-centered maternity care. I surrendered to share my story with others, so that we can all learn from the mistakes of the past. I surrendered to care for my newborn daughter. I surrendered to raise her, God willing, into adulthood. It was always my choice.

A New Start

2009 has finally arrived, and with it I'm hoping for a new start. I'm feeling pretty strong again. When things get overwhelming, when I'm sinking into the PTSD hell, I can never remember what I typically feel like. It's so easy to get bogged down in the sadness, the anger, the fear, and the despair. I'm used to feeling edgy, like a strong wind could tip me over, like I'm a step away from the mental hospital, but today I feel like a million bucks.

My daughter said, "I love you" for the very first time. She's reached such a fun age. I'm glad I took the time, money and energy to keep fighting for healing, so that I have the opportunity to enjoy her now. I'm finally strong enough to want a memento of what I've been through, so my husband bought me a Mother's ring for Christmas. I wouldn't have been able to put it on everyday during the last year, but now I am. I can finally see that there's more to being a mom than just giving birth, unfortunately, last year that was all I could see.

I'm hoping these feelings continue. I hope to keep living. I hope to keep being me.